HELLO! MY NAME SLAVA PURYSHEV

My name is Slava.
I’m 8 years old.

In March 2024, my life was split into “before” and “after”…
I was diagnosed with a rare genetic disease — Duchenne Muscular Dystrophy.

Because of a gene mutation, my muscles are gradually being replaced by fat tissue. By the age of 9 or 10, I will no longer be able to walk. Later, I won’t even be able to sit. Eventually, my muscles won’t be able to support the function of my internal organs. I’ll remain fully conscious, with the mind of a child my age, while dying in my parents’ arms — trapped in my own body.
But there is a treatment!

Just one injection of ELEVIDYS can restore the function of the faulty gene, and my muscles will start producing dystrophin again.

This medicine costs $2,901,907.
It sounds like a death sentence. But my parents refuse to give up! If you help them, they can raise this money.

I had to grow up too soon.
I want to live!